Causes: Health, Specifically Named Diseases

Mission: Reducing maternal and infant mortality attributed to amniotic fluid embolism while helping those impacted navigate paths forward.

Results: The Amniotic Fluid Embolism Foundation, a non-profit organization founded in 2008, quickly united the voices of families, survivors, medical professionals and researchers to call for greater awareness and resources to reduce the threat of amniotic fluid embolism (AFE). Our collective efforts have resulted in an internationally recognized research program on AFE, highly sought after educational programming for healthcare providers, and a worldwide network of support groups and resources for those impacted by an AFE. We are committed to identifying the cause, diagnosis, prevention, and treatment of amniotic fluid embolism and bring our information and resources to healthcare providers and impacted families through our education and support programs. We also strive to be the light guiding those impacted by an AFE through their physical and emotional recovery as they navigate their way forward. Prior to our establishment, families and healthcare providers impacted by an AFE had nowhere to turn to for information and support, left in the dark about what had happened and how to move forward. Since turning on our lights and shining our efforts into understanding this rare condition, we’ve helped tens of thousands of people gain knowledge, understanding, and support through some of their darkest days. We will continue to be the light as long as it takes to end AFE.

Target demographics: reduce maternal and infant death attributed to amniotic fluid embolism

Direct beneficiaries per year: We've helped thousands of families find the information, resources and support they need when faced with the birth complication, amniotic fluid embolism.

Geographic areas served: Internationally

Programs: RESEARCH:Our medical advisory team includes prominent healthcare providers and researchers experienced in amniotic fluid embolism. Since the inception of our Amniotic Fluid Embolism Registry in 2013, we have published 11 abstracts and articles, established internationally recognized and accepted diagnostic criteria, and enrolled the largest number of AFE cases ever studied. We will continue to advance clinical research through our AFE Registry and bio-repository for sample studies. EDUCATION: We have provided direct education to over 10,000 clinicians across the globe through lectures and panels at Grand Rounds, webinars, and medical society meetings and will broaden our reach through online training. We are proud to provide our perspective and educational information to many partner organizations that are aligned with our mission to reduce maternal and infant mortality, creating a stronger coalition of voices and broadcasting our message to a wider audience. SUPPORT: The need for accurate, timely information and support for families experiencing an AFE is great. As the only organization entirely dedicated to amniotic fluid embolism and those it impacts, we offer a safe place for questions and a community with a shared experience. The immediate and long-term needs of over 1,500 families worldwide remain central to our mission as we work diligently to end AFE.