Causes: Health
Mission: American Partnership For Eosinophilic Disorders (APFED) is a non-profit organization founded in 2001.It's mission is to passionately embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases through education and awareness, research, support, and advocacy.
Results: Since its incorporation in 2001, APFED has made a huge impact in all areas of its mission: education, awareness, support, and research. - Educated patients, families, healthcare providers, and the public about eosinophilic disorders and how to manage them. - Initiated and supported groundbreaking advocacy efforts on the state and federal levels to help families secure insurance coverage for medical foods, federal funding for research, and preserve/increase protections for patients diagnosed with rare diseases. - Played a critical role in encouraging the development of comprehensive guidelines for the diagnosis and treatment of eosinophilic esophagitis. - Led the effort to develop ICD-9 codes for eosinophilic gastrointestinal disorders, which are crucial for insurance coverage of therapy and for ongoing research, as well as led the effort to develop ICD-10 codes for subsets of eosinophil diseases that currently do not have a code. - Authored the bill for National Eosinophil Awareness Week (third week of May) and worked with the community to get it passed. - Participated in the NIH working group that was assembled to define unmet research needs for eosinophilic disorders, and we were instrumental in publishing a report on these findings, charting the course for scientific breakthroughs. - Provided critical research grants through APFED’s Hope on the Horizon Research Program, supported 100% by community donations, leading us to a better understanding of eosinophilic disorders, less-invasive diagnostics, and improved therapies.
Target demographics: fund research for Eosinophilic Disorders
Geographic areas served: Global
Programs: HOPE Research GrantsEducation ProgramsAdvocacy ProgramsAwareness Campaigns
Mission: American Partnership For Eosinophilic Disorders (APFED) is a non-profit organization founded in 2001.It's mission is to passionately embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases through education and awareness, research, support, and advocacy.
Results: Since its incorporation in 2001, APFED has made a huge impact in all areas of its mission: education, awareness, support, and research. - Educated patients, families, healthcare providers, and the public about eosinophilic disorders and how to manage them. - Initiated and supported groundbreaking advocacy efforts on the state and federal levels to help families secure insurance coverage for medical foods, federal funding for research, and preserve/increase protections for patients diagnosed with rare diseases. - Played a critical role in encouraging the development of comprehensive guidelines for the diagnosis and treatment of eosinophilic esophagitis. - Led the effort to develop ICD-9 codes for eosinophilic gastrointestinal disorders, which are crucial for insurance coverage of therapy and for ongoing research, as well as led the effort to develop ICD-10 codes for subsets of eosinophil diseases that currently do not have a code. - Authored the bill for National Eosinophil Awareness Week (third week of May) and worked with the community to get it passed. - Participated in the NIH working group that was assembled to define unmet research needs for eosinophilic disorders, and we were instrumental in publishing a report on these findings, charting the course for scientific breakthroughs. - Provided critical research grants through APFED’s Hope on the Horizon Research Program, supported 100% by community donations, leading us to a better understanding of eosinophilic disorders, less-invasive diagnostics, and improved therapies.
Target demographics: fund research for Eosinophilic Disorders
Geographic areas served: Global
Programs: HOPE Research GrantsEducation ProgramsAdvocacy ProgramsAwareness Campaigns
Health
Atlanta
