Causes: Health, Specifically Named Diseases, Specifically Named Diseases Research
Mission: Founded in 2005, the APS Foundation of America, Inc. is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Syndrome (APS), the major cause of multiple miscarriages, thrombosis, young strokes and heart attacks. We are a volunteer run, community based 501(c)3 non-profit Public Charity organization and is dedicated to fostering and facilitating joint efforts in the areas of education, support, public awareness, research and patient services. The APSFA's Medical Advisory Team includes nationally & internationally recognized experts on Antiphospholipid Syndrome.
Results: 2021 Year in Review(These are in no particular order. )Maintained 501(c)3 Non-Profit Status granted under Section 170,2055,2106,2522.We also were granted an advanced ruling as a Public Charity. Filed Taxes. Registered to solicit in the states we were required to do so. Made all brochure & booklets that have bibliographies available – available online. Donated & Mailed Brochures & Booklets –benefited at least 50,000 people. Invited to several large professional medical conferences. Represented at the Annual Venous Disease Coalition Meeting. Represented at the American College of Rheumatology Annual MeetingPartially funded Research for APS ACTIONPromoted APS iBook published by Laurent Phialy, Stephane Zuily, and Dourk ErkanMaintained EURORDIS membershipNetworking with other Non-Profit Organizations and medical professionals. Maintained HONCode Certification on APS Foundation of America, Inc. Earned the GuideStar Exchange Seal: Platinum Participant. Only 0.5% of organization have this rating. Attended via Digital due to COVID-19 & Spoke at CARRA Annual Scientific Meeting / ACR PRYSM 2021Continued June 9th as World APS Awareness Day. Continued June as APS Awareness Month. Participated in Deep Vein Thrombosis Awareness MonthParticipated in Lupus Awareness MonthParticipated in Stroke Awareness MonthParticipated in Heart Disease Awareness MonthParticipated in Autoimmune Awareness MonthParticipated in Rare Disease DayParticipated in World Thrombosis Day with APS AwarenessContinued collaborations with MoMMA’s VoicesContinued collaboration with Rare Disease LegislationContinued collaboration with EURODISContinued collaboration with CARRA on APS and LupusContinued collaboration with National Coalitionof Autoimmune Patient GroupsParticipated in Pregnancy Loss and Stillborn Awareness MonthSupported various legislation through a national coalition of patient organizationsAttended National Coalition of Autoimmune Patient Groups Meeting in September hosted by American Autoimmune. (Topic: COVID-19 Vaccines)Invited to and Participated in Chat with Thrombosis Experts, Medscape & Everyday Health on World Thrombosis DayAttended & Hosted a Booth the Inaugural Autoimmune Summit presented by the Autoimmune AssociationCollaborative work with Stago DiagnosticsAPSFA Medical Advisors posted COVID-19 Vaccine StatementStarted publishing Constant Contact Newsletter News BriefsLaunched press releases – benefited at least 500,000 people. Launched Radio Public Service Announcements – benefited at least 2,000,000.Donated $14,000 to APS ACTION for their ongoing needs in research. Shared reputable articles pertaining to APS at lay and professional level, as well as disease related such as DVT, PE, stroke, Raynaud’s for example. Shared reputable disease prevention articles. Shared inspiration http://apsfa. org/new/wp-content/uploads/2022/02/2021-Year-in-Review. pdf
Target demographics: patients with Antiphospholipid Syndrome (APS)
Direct beneficiaries per year: 1,000,000 people
Geographic areas served: USA
Programs: information and education on antiphospholipid syndrometo support research regarding antiphosholipid antibody syndrome
Mission: Founded in 2005, the APS Foundation of America, Inc. is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Syndrome (APS), the major cause of multiple miscarriages, thrombosis, young strokes and heart attacks. We are a volunteer run, community based 501(c)3 non-profit Public Charity organization and is dedicated to fostering and facilitating joint efforts in the areas of education, support, public awareness, research and patient services. The APSFA's Medical Advisory Team includes nationally & internationally recognized experts on Antiphospholipid Syndrome.
Results: 2021 Year in Review(These are in no particular order. )Maintained 501(c)3 Non-Profit Status granted under Section 170,2055,2106,2522.We also were granted an advanced ruling as a Public Charity. Filed Taxes. Registered to solicit in the states we were required to do so. Made all brochure & booklets that have bibliographies available – available online. Donated & Mailed Brochures & Booklets –benefited at least 50,000 people. Invited to several large professional medical conferences. Represented at the Annual Venous Disease Coalition Meeting. Represented at the American College of Rheumatology Annual MeetingPartially funded Research for APS ACTIONPromoted APS iBook published by Laurent Phialy, Stephane Zuily, and Dourk ErkanMaintained EURORDIS membershipNetworking with other Non-Profit Organizations and medical professionals. Maintained HONCode Certification on APS Foundation of America, Inc. Earned the GuideStar Exchange Seal: Platinum Participant. Only 0.5% of organization have this rating. Attended via Digital due to COVID-19 & Spoke at CARRA Annual Scientific Meeting / ACR PRYSM 2021Continued June 9th as World APS Awareness Day. Continued June as APS Awareness Month. Participated in Deep Vein Thrombosis Awareness MonthParticipated in Lupus Awareness MonthParticipated in Stroke Awareness MonthParticipated in Heart Disease Awareness MonthParticipated in Autoimmune Awareness MonthParticipated in Rare Disease DayParticipated in World Thrombosis Day with APS AwarenessContinued collaborations with MoMMA’s VoicesContinued collaboration with Rare Disease LegislationContinued collaboration with EURODISContinued collaboration with CARRA on APS and LupusContinued collaboration with National Coalitionof Autoimmune Patient GroupsParticipated in Pregnancy Loss and Stillborn Awareness MonthSupported various legislation through a national coalition of patient organizationsAttended National Coalition of Autoimmune Patient Groups Meeting in September hosted by American Autoimmune. (Topic: COVID-19 Vaccines)Invited to and Participated in Chat with Thrombosis Experts, Medscape & Everyday Health on World Thrombosis DayAttended & Hosted a Booth the Inaugural Autoimmune Summit presented by the Autoimmune AssociationCollaborative work with Stago DiagnosticsAPSFA Medical Advisors posted COVID-19 Vaccine StatementStarted publishing Constant Contact Newsletter News BriefsLaunched press releases – benefited at least 500,000 people. Launched Radio Public Service Announcements – benefited at least 2,000,000.Donated $14,000 to APS ACTION for their ongoing needs in research. Shared reputable articles pertaining to APS at lay and professional level, as well as disease related such as DVT, PE, stroke, Raynaud’s for example. Shared reputable disease prevention articles. Shared inspiration http://apsfa. org/new/wp-content/uploads/2022/02/2021-Year-in-Review. pdf
Target demographics: patients with Antiphospholipid Syndrome (APS)
Direct beneficiaries per year: 1,000,000 people
Geographic areas served: USA
Programs: information and education on antiphospholipid syndrometo support research regarding antiphosholipid antibody syndrome
Health
La Crosse
