Causes: Birth Defects & Genetic Diseases, Health, Heart & Circulatory System Diseases & Disorders
Mission: The Adult Congenital Heart Association (ACHA) is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy, and research, ACHA serves and supports the more than 1.4 million adults with congenital heart defects, their families and the medical community.
Results: Below are ACHA’s 2019 programming outcomes.
• More than 800 ACHA members attended 13 different webinars in 2019.In addition, archived webinars are available on demand on the ACHA website and have had over 5000 views in 2019.
• In 2019, a watershed moment for ACHA took place, as we funded six research grants to advance the science of congenital heart disease (CHD) in adults. The research program aims to improve the lives of CHD patients and future generations in partnership with medical professionals.
• Launched in 2015, ACHA worked with leading providers of adult congenital heart disease care to develop criteria for ACHD accreditation. This is a crucial area for advancing and standardizing the quality of care for ACHD. Every person with CHD needs access to specialized care regardless of where they live. At the end of 2019, there were 34 ACHA ACHD Accredited Programs with several more working through the process.
• ACHA legislatively advocates by meeting lawmakers in DC and in their district offices year-round.
• More than 328,000 website sessions in 2019.This included more than 253,000 users, accounting for over 572,000 page views.
• In 2019 ACHA peer mentors and staff presented on the importance of lifelong cardiac care at over 30 events. Hundreds of CHD patients and families received this carefully crafted message.
• In 2019, ACHA was thrilled to launch its brand-new fundraising campaign, Walk for 1 in 100! We walked to raise funds for the 1 in 100 children and adults impacted by CHD across the country. In our inaugural year, 3,300 supporters walked in one of our 12 walk locations across the country or virtually—and together, they raised $600,000.
Target demographics: Adults living with congenital heart disease, their families, and medical providers who serve congenital heart disease patients
Direct beneficiaries per year: More than 25,000 people
Geographic areas served: United States
Programs: Heart to Heart Peer Mentors, Regional Events and National Conferences, Webinars, Online Community Discussion Forum, Adult Congenital Heart Disease Program Directory, Online and Printed Material, Walk for 1 in 100, Advocacy and Professional Programs, ACHD Fellowships and ACHA ACHD Accreditation and Research
Mission: The Adult Congenital Heart Association (ACHA) is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy, and research, ACHA serves and supports the more than 1.4 million adults with congenital heart defects, their families and the medical community.
Results: Below are ACHA’s 2019 programming outcomes.
• More than 800 ACHA members attended 13 different webinars in 2019.In addition, archived webinars are available on demand on the ACHA website and have had over 5000 views in 2019.
• In 2019, a watershed moment for ACHA took place, as we funded six research grants to advance the science of congenital heart disease (CHD) in adults. The research program aims to improve the lives of CHD patients and future generations in partnership with medical professionals.
• Launched in 2015, ACHA worked with leading providers of adult congenital heart disease care to develop criteria for ACHD accreditation. This is a crucial area for advancing and standardizing the quality of care for ACHD. Every person with CHD needs access to specialized care regardless of where they live. At the end of 2019, there were 34 ACHA ACHD Accredited Programs with several more working through the process.
• ACHA legislatively advocates by meeting lawmakers in DC and in their district offices year-round.
• More than 328,000 website sessions in 2019.This included more than 253,000 users, accounting for over 572,000 page views.
• In 2019 ACHA peer mentors and staff presented on the importance of lifelong cardiac care at over 30 events. Hundreds of CHD patients and families received this carefully crafted message.
• In 2019, ACHA was thrilled to launch its brand-new fundraising campaign, Walk for 1 in 100! We walked to raise funds for the 1 in 100 children and adults impacted by CHD across the country. In our inaugural year, 3,300 supporters walked in one of our 12 walk locations across the country or virtually—and together, they raised $600,000.
Target demographics: Adults living with congenital heart disease, their families, and medical providers who serve congenital heart disease patients
Direct beneficiaries per year: More than 25,000 people
Geographic areas served: United States
Programs: Heart to Heart Peer Mentors, Regional Events and National Conferences, Webinars, Online Community Discussion Forum, Adult Congenital Heart Disease Program Directory, Online and Printed Material, Walk for 1 in 100, Advocacy and Professional Programs, ACHD Fellowships and ACHA ACHD Accreditation and Research
info@achaheart.org
280 North Providence Road Suite 6, Media, PA 19063
888-921-ACHA
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