Mission: Batten disease support & research association's mission is to be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as batten disease.
Programs: Programs such as the sibling program, parent/mentors and the general bereavement program all will help to alleviate stress and hardship on families whose loved ones are victims of batten disease
grants were given for research for a cure for batten disease
conferences & conventions held for research, discussions and support for a cure for batten disease