Mission: The C&S Patient Education Foundation is dedicated to improving the experiences and outcomes of Chiari & syringomyelia patients by: 1.Providing accurate, up-to-date, and easy to understand information to patients so that they can take control of their health care and make intelligent, informed decisions 2.Raising awareness among family, friends, and the general public so that they can understand what patients are going through and are better able to provide support 3.Raising awareness among, and providing accurate, up-to-date information to, the medical community, so that errors in diagnosis and treatment are reduced 4.Sponsoring research to advance the understanding of these conditions and in the end Conquer Chiari
Programs: Grants for research projects focused on improving diagnostics, assessing the cognitive effects of chiari, genetics research, and other critical areas. Most funding is directed towards the conquer chiari research center (ccrc) at the university of akron, the world's first research laboratory dedicated solely to advancing the medical and scientific understanding of chiari malformation. The ccrc is a state of the art facility, staffed with distinguished researchers, working diligently to: apply the latest engineering techniques and analysis to improve diagnoses and treatment options, leverage the conquer chiari patient registry to study the epidemiology and natural history of chiari, foster collaborations with leading clinicians and scientists to advance the conquer chiari research agenda and act as a focal point for the chiari research.