Causes: Birth Defects & Genetic Diseases Research, Health, Pediatrics Research
Mission: For a quarter of a century, CDH International (formerly known as CHERUBS) has fought Congenital Diaphragmatic Hernia. Our only mission at CDH International is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions, one patient, one hospital or one country. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 6300 CDH families.
Results: * Over $1,000,000 raised* World's largest natural history CDH Registry* Collaborations with research centers around the world* Patient Advocacy with the CDH Study Group* Collaboration with the World Health Organization* Collaborations with the Rare Disease Community* Proclamations from the US Senate and 50 Governors* Work with the NIH* Light Ups of major buildings around the world* Lobbying on Capitol Hill for CDH Awareness and Research Funding for hospitals* Founding member organization of the Alliance of Congenital Diaphragmatic Hernia Organizations* Mentored over a dozen new non-profits* NGOs in 3 countries* Providing free support and information to over 6300 patient families in 70 countries
Target demographics: families of babies born with Congenital Diaphragmatic Hernia
Direct beneficiaries per year: Over 6500 patients and families
Geographic areas served: International
Programs: Information on Congenital Diaphragmatic HerniaCDH Research RegistryCare packages for CDH patients in the NICUInternational ConferenceCDH International AppOn-line and On App SupportLocal Get-TogethersParent Reference GuideResearch GrantsScholarshipsFinancial AssistanceCDH Awareness Day EventsLandmarks Lit UpProclamations and LegislationPatient Advocacy at NIH, the WHO and on Capitol Hill
Mission: For a quarter of a century, CDH International (formerly known as CHERUBS) has fought Congenital Diaphragmatic Hernia. Our only mission at CDH International is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions, one patient, one hospital or one country. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 6300 CDH families.
Results: * Over $1,000,000 raised* World's largest natural history CDH Registry* Collaborations with research centers around the world* Patient Advocacy with the CDH Study Group* Collaboration with the World Health Organization* Collaborations with the Rare Disease Community* Proclamations from the US Senate and 50 Governors* Work with the NIH* Light Ups of major buildings around the world* Lobbying on Capitol Hill for CDH Awareness and Research Funding for hospitals* Founding member organization of the Alliance of Congenital Diaphragmatic Hernia Organizations* Mentored over a dozen new non-profits* NGOs in 3 countries* Providing free support and information to over 6300 patient families in 70 countries
Target demographics: families of babies born with Congenital Diaphragmatic Hernia
Direct beneficiaries per year: Over 6500 patients and families
Geographic areas served: International
Programs: Information on Congenital Diaphragmatic HerniaCDH Research RegistryCare packages for CDH patients in the NICUInternational ConferenceCDH International AppOn-line and On App SupportLocal Get-TogethersParent Reference GuideResearch GrantsScholarshipsFinancial AssistanceCDH Awareness Day EventsLandmarks Lit UpProclamations and LegislationPatient Advocacy at NIH, the WHO and on Capitol Hill
Health
Wake Forest
