Causes: Birth Defects & Genetic Diseases, Health, Specifically Named Diseases

Mission: The Cooley’s Anemia Foundation (CAF) was founded in 1954 by dedicated parents of afflicted children, many of whom remain involved as members of the Foundation’s governing body. At CAF’s inception, children with thalassemia were confined to hospital care and barely survived their first decade of life. CAF’s legislative and research efforts helped pave the way for improved quality of life and longer life expectancy. CAF is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley’s anemia/thalassemia major. Our mission is advancing the treatment and cure for this fatal blood disease, enhancing the quality of life of patients and educating the medical profession, trait carriers and the public about Cooley’s anemia/thalassemia major.

Target demographics: The Cooley’s Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley’s Anemia/Thalassemia Major.

Direct beneficiaries per year: Patients in the US

Geographic areas served: US

Programs: Research grants - payments for medical research to enhance knowledge in treatment and eventual cure.

public information - general information for the general public: films, brochures, and legislative symposium for the medical profession.