Mission: The mission of the Cystinosis Research Foundation is to support bench, clinical and translational research for better treatments and a cure for cystinosis. Through our aggressively funded research agenda, the Cystinosis Research Foundation issues grants for bench and clinical research studies bi-annually in order to accelerate research progress and ensure that cystinosis research is ongoing and focused on novel treatments and a cure. The Cystinosis Research Foundation is dedicated to educating the public and the medical community about cystinosis to ensure early diagnosis and proper treatment. CRF is the largest private fund provider of cystinosis research grants in the world. CRF has raised over $60 million for cystinosis research. It has awarded 206 multi-year grants and is funding researchers in 12 countries. (Less)

Cystinosis Research Foundation is a 501(c)(3) organization, with an IRS ruling year of 2003, and donations are tax-deductible.