Causes: Education, Health, Human Service Organizations, Human Services

Mission: Hope for Hypothalamic Hamartomas (HopeForHH. org) provides information, support, and community to HH patients, caregivers, and healthcare providers. We promote research into early detection, improved treatments, living with HH as a complex medical syndrome, and a cure.

Target demographics: individuals and caregivers with Hypothalamic Hamartoma Syndrome

Geographic areas served: the international community.

Programs: We provide Hypothalamic Hamartoma Syndrome information to patients, caregivers, and healthcare providers. Our goal is to ensure patients have access to up-to-date information on HH diagnosis, treatment, research, and associated comorbidities. We drive new research toward early detection, improved treatments, and well as in finding a cure. We provide support to HH patients and caregivers through Patient Conferences, Patient Surgical Support bags, and one on one support programs.