Causes: Birth Defects & Genetic Diseases, Birth Defects & Genetic Diseases Research, Eye Diseases, Blindness & Vision Impairments, Health
Mission: The mission of the IWSA is to increase awareness, facilitate research, and support families affected by WAGR syndrome
Target demographics: children and adults with WAGR syndrome
Geographic areas served: 29 countries around the world
Programs: Our website and electronic newsletter educates families and physicians. Our comprehensive online Patient Registry helps researchers to study this disorder. Our public and private Facebook groups promote awareness and give parents a place to share trials and triumphs. Our annual "WAGR Weekend" events bring families and children together to meet and to learn about the disorder.
Mission: The mission of the IWSA is to increase awareness, facilitate research, and support families affected by WAGR syndrome
Target demographics: children and adults with WAGR syndrome
Geographic areas served: 29 countries around the world
Programs: Our website and electronic newsletter educates families and physicians. Our comprehensive online Patient Registry helps researchers to study this disorder. Our public and private Facebook groups promote awareness and give parents a place to share trials and triumphs. Our annual "WAGR Weekend" events bring families and children together to meet and to learn about the disorder.
PO Box 2875, Montgomery Village , MD 20886
Health
Montgomery Village
