Causes: Health, Specifically Named Diseases
Mission: MitoAction is dedicated to improving the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives.
Target demographics: Mitochondrial disease patients and families.
Programs: MitoAction focuses on programs and resources that improve the quality of life for mitochondrial disease patients and families. We help patients and families better understand mitochondrial disease, educate both the general and medical communities, and empower the patient/parent to be an advocate.
MitoAction strives to offer support and practical resources at no cost to every individual or caregiver affected by mitochondrial disease. These initiatives help patients and families deal with the diagnosis of mitochondrial disease and offer assistance in navigating the medical system, school, community, and workplace. MitoAction's resources include Mito 411, a toll-free peer support hotline; monthly international teleconferences; family socials and weekly support groups; access to expert information via our website and teleconferencing, podcasts, and videos; an awareness walk; free educational DVDs and school advocacy resources; an online guide for primary care physicians offering explanations and recommendations for managing mitochondrial disease; the Marcel's Way Family Fund; and more.
MitoAction has created special partnerships with three summer camps as part of our mission to make summer camp a possibility for every child who suffers from mitochondrial disease. Each of these camps is part of the nationally accredited SeriousFun camp network, and offers safe, medically supervised programs that allow Mito kids to be free and safe, meet new friends, have fun, forget about their tubes and meds, and "just be kids. " Through our partnerships, these camps are well-equipped to shape programs for our Mito kids by understanding the unique challenges of mitochondrial disease. The Matthew Harty Camp & Scholarship Fund helps ensure these kids and families can have this incredible camp experience completely free of charge.
Mission: MitoAction is dedicated to improving the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives.
Target demographics: Mitochondrial disease patients and families.
Programs: MitoAction focuses on programs and resources that improve the quality of life for mitochondrial disease patients and families. We help patients and families better understand mitochondrial disease, educate both the general and medical communities, and empower the patient/parent to be an advocate.
MitoAction strives to offer support and practical resources at no cost to every individual or caregiver affected by mitochondrial disease. These initiatives help patients and families deal with the diagnosis of mitochondrial disease and offer assistance in navigating the medical system, school, community, and workplace. MitoAction's resources include Mito 411, a toll-free peer support hotline; monthly international teleconferences; family socials and weekly support groups; access to expert information via our website and teleconferencing, podcasts, and videos; an awareness walk; free educational DVDs and school advocacy resources; an online guide for primary care physicians offering explanations and recommendations for managing mitochondrial disease; the Marcel's Way Family Fund; and more.
MitoAction has created special partnerships with three summer camps as part of our mission to make summer camp a possibility for every child who suffers from mitochondrial disease. Each of these camps is part of the nationally accredited SeriousFun camp network, and offers safe, medically supervised programs that allow Mito kids to be free and safe, meet new friends, have fun, forget about their tubes and meds, and "just be kids. " Through our partnerships, these camps are well-equipped to shape programs for our Mito kids by understanding the unique challenges of mitochondrial disease. The Matthew Harty Camp & Scholarship Fund helps ensure these kids and families can have this incredible camp experience completely free of charge.
Health
Boston
