Causes: Health, Voluntary Health Associations & Medical Disciplines
Mission: The Multiple System Atrophy (MSA) Coalition® is a positive beacon of hope standing up to a little known, rare, insidious disorder. For over 30 years, the MSA Coalition has been devoted to improving the quality of life and building hope for people affected by multiple system atrophy by focusing on a four-pillar mission:Providing patients and caregivers with trusted and compassionate emotional support; Educating patients, care-partners and healthcare professionals with credible, critically important and relevant information; Funding patient-centric collaborative research aimed at alleviating symptoms, slowing disease progression and discovering a cure; Building a sense of community by connecting and unifying people affected by MSA
Results: The MSA Coalition is the premiere US nonprofit organization dedicated to support, education, research and advocacy for this devastating neurological disease. Thousands of participants benefit from the annual MSA Coalition Family Conference, which is live streamed and posted online. With multiple online discussion groups and a dedicated support line, someone is always there to help. As the host of the first-ever Global MSA Advocacy meeting, the MSA Coalition works with other like-minded charities to foster a community of support and care. As the leading nonprofit funder of global multiple system atrophy research, the MSA Coalition has a proven track record of catalyzing research collaborations, and with the advice of our world renowned Scientific Advisory Board, selecting and funding the most promising research efforts around the world. As of 2022, $3.5 Million has been granted to 55 MSA research projects at 34 research institutions in 10 countries. Learn more at http://www. multiplesystematrophy. org/ or call our support hotline tollfree 866-737-5999
Target demographics: Families affected by multiple system atrophy
Geographic areas served: United States and globally
Programs: Toll free support hotline, annual support conference for patients and families, research grants to scientists, education of physicians, advocacy
Mission: The Multiple System Atrophy (MSA) Coalition® is a positive beacon of hope standing up to a little known, rare, insidious disorder. For over 30 years, the MSA Coalition has been devoted to improving the quality of life and building hope for people affected by multiple system atrophy by focusing on a four-pillar mission:Providing patients and caregivers with trusted and compassionate emotional support; Educating patients, care-partners and healthcare professionals with credible, critically important and relevant information; Funding patient-centric collaborative research aimed at alleviating symptoms, slowing disease progression and discovering a cure; Building a sense of community by connecting and unifying people affected by MSA
Results: The MSA Coalition is the premiere US nonprofit organization dedicated to support, education, research and advocacy for this devastating neurological disease. Thousands of participants benefit from the annual MSA Coalition Family Conference, which is live streamed and posted online. With multiple online discussion groups and a dedicated support line, someone is always there to help. As the host of the first-ever Global MSA Advocacy meeting, the MSA Coalition works with other like-minded charities to foster a community of support and care. As the leading nonprofit funder of global multiple system atrophy research, the MSA Coalition has a proven track record of catalyzing research collaborations, and with the advice of our world renowned Scientific Advisory Board, selecting and funding the most promising research efforts around the world. As of 2022, $3.5 Million has been granted to 55 MSA research projects at 34 research institutions in 10 countries. Learn more at http://www. multiplesystematrophy. org/ or call our support hotline tollfree 866-737-5999
Target demographics: Families affected by multiple system atrophy
Geographic areas served: United States and globally
Programs: Toll free support hotline, annual support conference for patients and families, research grants to scientists, education of physicians, advocacy
7918 Jones Branch Drive, Suite 300, McLean, VA 22102
866-737-4999
Health
McLean
