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Causes: Cancer, Health

Mission: NCCS advocates for quality cancer care for all Americans and provides tools that empower people affected by cancer to advocate for themselves. Founded by and for cancer survivors in 1986, NCCS created the widely accepted definition of survivorship and considers someone a cancer survivor from the time of diagnosis through the balance of life. Since our founding, NCCS has worked collaboratively in pursuit of our mission to advocate for quality cancer care for all Americans and to provide tools that empower people affected by cancer to advocate for themselves. It is only with the support of organizations & people like you that we are able to advance the voice of survivors and their loved ones. Our free publications and resources include the award-winning Cancer Survival Toolbox®, a self-learning audio program created by leading cancer organizations to help people develop essential skills to meet the challenges of their illness. More information is available at www. canceradvocacy. org or 1-877-NCCS-YES.

Results: NCCS is known as a convener of diverse groups throughout the cancer community and the broader healthcare arena. A prime example of our collaborative success is the formation of the Cancer Leadership Council (CLC), by NCCS in 1993, which now includes 34 leading cancer research, support and advocacy organizations. The CLC meets monthly to consider issues that affect the quality of research and the quality of care for people diagnosed with cancer. Other collaborations have included our Cancer Policy Roundtables, and our partnership with the American Society of Clinical Oncology (ASCO) in co-chairing the Cancer Quality Alliance (CQA). NCCS is proud of its track record as an honest broker of patient-centered education and advocacy to inform science, regulatory, and health policies related to cancer. Our relationship with some of the nation’s most respected health leaders and policymakers enables NCCS to carry out its important work. NCCS led a nationwide grassroots campaign to make the cause, the care and the cure of cancer the nation’s top health priority. The campaign culminated in 1998’s THE MARCH…Coming Together to Conquer CancerTM, an event that brought more than 100,000 supporters to the nation’s capital and a million more to events in all 50 states. The Cancer Survival Toolbox® was developed by survivors, social workers, and nurses, and represents a unique collaboration of the National Coalition for Cancer Survivorship, the Association of Oncology Social Work (AOSW), the Oncology Nursing Society (ONS), and the National Association of Social Workers (NASW). The Toolbox is a free, award-winning self-learning audio program that has been used by hundreds of thousands of listeners since 1998.The Toolbox addresses vital issues such as communicating with your doctors, finding information, advocating, topics for older persons, clinical trials, paying for care, and tips for caregivers. In 2009, the Cancer Survival Toolbox® received two National Health Information Awards, which recognize the nation's best consumer health information programs and materials. Both winning entries, the Toolbox and the Toolbox's Multiple Myeloma Module, received the highest award given in each category and were selected from more than 1,000 entries judged by a national panel of health information experts. Each year, NCCS strives to disseminate 50,000 digital and hard copy Toolboxes to individuals, healthcare professionals, cancer centers, community hospitals, support groups, community organizations, and clergy. Journey Forward is a partnership between NCCS, UCLA Cancer Survivorship Center, Genentech, and Wellpoint. Journey Forward provides tools and resources for survivors to plan their follow-up care and monitor their progress after active cancer treatment. In 2010, Journey Forward became available for survivors of all cancers.

Programs: Since 1986, NCCS has worked collaboratively in pursuit of our mission to advocate for quality cancer care for all Americans and to provide tools that empower people affected by cancer to advocate for themselves. It is only with the support of organizations & people like you that we are able to advance the voice of survivors and their loved ones. NCCS is actively supporting legislation introduced in June 2013 by Congresswoman Lois Capps (D-CA) and Congressman Charles Boustany, Jr. , M. D. , (R-LA). The Planning Actively for Cancer Treatment (PACT) Act (H. R. 2477) would significantly improve the quality and coordination of care for Medicare patients with cancer. The bill is the top federal policy priority of NCCS. NCCS has produced numerous award-winning publications and resources intended for cancer patients, the newly-diagnosed, caregivers, and loved ones. These resources focus on a wide range of cancer topics and are all available for free on NCCS' website.
info@canceradvocacy.org
1010 Wayne Ave Suite 315, Silver Spring, MD 20910
301-650-9127
Cancer
Silver Spring
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