5 out of 5
Not Fade Away
Rating 5 | 13 reviews
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Product Description
A Memoir of Senses Lost and Found
This is an inspiring and moving memoir of a young woman who is slowly losing her sight and hearing due to Usher Syndrome, yet continues to live life to its fullest potential.
OVERVIEW
Born with a rare genetic mutation called Usher syndrome type III, Rebecca Alexander has been simultaneously losing both her sight and hearing since she was a child, and she was told that she would likely be completely blind and deaf by thirty. Then, at eighteen, a fall from a window left her athletic body completely shattered.
None of us know what we would do in the face of such devastation. What Rebecca did was rise to every challenge she faced. She was losing her vision and hearing and her body was broken, but she refused to lose her drive, her zest for life, or-maybe most important-her sense of humor. Now, at thirty-five, with only a sliver of sight and significantly deteriorated hearing, she is a psychotherapist with two masters' degrees from Columbia University and an athlete who teaches spin classes and regularly competes in extreme endurance races. She greets every day as if it were a gift, with boundless energy, innate curiosity, and a strength of spirit that have led her to places we can't imagine.
In Not Fade Away, Rebecca tells her extraordinary story, by turns harrowing, funny, and inspiring. She meditates on what she's lost-from the sound of a whisper to seeing a sky full of stars, and what she's found in return-an exquisite sense of intimacy with those she is closest to, a love of silence, a profound gratitude for everything she still has, and a joy in simple pleasures that most of us forget to notice.
Not Fade Away is both a memoir of the senses and a unique look at the obstacles we all face-physical, psychological, and philosophical-exploring the extraordinary powers of memory, love, and perseverance. It is a gripping story, an offering of hope and motivation, and an exquisite reminder to live each day to its fullest.
Additional Details
This is an inspiring and moving memoir of a young woman who is slowly losing her sight and hearing due to Usher Syndrome, yet continues to live life to its fullest potential.
OVERVIEW
Born with a rare genetic mutation called Usher syndrome type III, Rebecca Alexander has been simultaneously losing both her sight and hearing since she was a child, and she was told that she would likely be completely blind and deaf by thirty. Then, at eighteen, a fall from a window left her athletic body completely shattered.
None of us know what we would do in the face of such devastation. What Rebecca did was rise to every challenge she faced. She was losing her vision and hearing and her body was broken, but she refused to lose her drive, her zest for life, or-maybe most important-her sense of humor. Now, at thirty-five, with only a sliver of sight and significantly deteriorated hearing, she is a psychotherapist with two masters' degrees from Columbia University and an athlete who teaches spin classes and regularly competes in extreme endurance races. She greets every day as if it were a gift, with boundless energy, innate curiosity, and a strength of spirit that have led her to places we can't imagine.
In Not Fade Away, Rebecca tells her extraordinary story, by turns harrowing, funny, and inspiring. She meditates on what she's lost-from the sound of a whisper to seeing a sky full of stars, and what she's found in return-an exquisite sense of intimacy with those she is closest to, a love of silence, a profound gratitude for everything she still has, and a joy in simple pleasures that most of us forget to notice.
Not Fade Away is both a memoir of the senses and a unique look at the obstacles we all face-physical, psychological, and philosophical-exploring the extraordinary powers of memory, love, and perseverance. It is a gripping story, an offering of hope and motivation, and an exquisite reminder to live each day to its fullest.
Additional Details
| Feature | Details | |
|---|---|---|
| Mfg part # | 978-1-592-40941-9 | |
| UPC | 9781592409419 | |
| Weight (lbs) | 0.67 | |
| Country of Manufacture | United States | |
| Author(s) | Rebecca Alexander | |
| Deaf Author | No | |
| Publication Date | 2015 | |
| Media Type(s) Book CD-ROM DVD | Yes No No | |
| Cover Type | Paperback | |
| Pages | 308 | |
| Voice Over / Audio | No | |
| Captions | No | |
| Age(s) Baby Child Teen Adult | No No No Yes | |
| Earn CEUs | No | |
| ISBN | 9781592409419 |
Attention CA Residents: Prop 65 Warning
WARNING:
This product can expose you to chemicals which are known to the State of California to cause cancer, birth defects, or other reproductive harm. For more information, go to www.p65warnings.ca.gov.
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Customer Reviews
By Avid Reader
Date: May 10, 2018
What an inspiration! So down to earth and educational. Thanks for sharing your most intimate thoughts. Love can get us through anything.
Rating: [5 of 5 Stars!]
[5 of 5 Stars!]
By Tom L
Date: April 29, 2018
I can relate to Rebecca???s dread of getting her vision tests, knowing already what they will say: ???your vision has gotten worse again.??? From about the age of 5 to 35, I dreaded the eye doctor because I always got the same news: ???your vision has gotten worse again, here are thicker glasses and stronger, less bearable, contact lenses for you to endure. Have a nice day!??? Even though they never told me I was going blind, I certainly seemed to be in the express lane for it. Because of that, I have always been fascinated by other people???s stories of vision loss or of blind people, I guess because someday I figured I could very well be among them, at the rate I was going. I read this book expecting a story of what it would be like to find out you are going blind and deaf, but what I got was so much more. What I found was not really a story of coping with disabilities, but more a story of living life to the fullest, regardless of your circumstances. Rebecca is funny, intelligent, compassionate, and extremely athletic; accomplishing things already that most fully able-bodied people never even come close to achieving in their lives. I have no doubt, given her strong network of family and friends, and her amazing perspective and perseverance, that she will continue to thrive, no matter what path her eyes and ears decide to go down. Truly a remarkable woman and I thank her for this uplifting read and wish her the very best, if she ever reads this! Highly recommended!
Rating: [5 of 5 Stars!]
[5 of 5 Stars!]
By Karen Wilson
Date: February 21, 2018
Very insightful and inspirational!
Rating: [5 of 5 Stars!]
[5 of 5 Stars!]
By S.
Date: January 30, 2018
Rebecca???s book is interesting and well written. It helped give me insight into my 2 yr old nephews life and what it could possibly be like in the future. As scary as it all can be it is also inspiring at all that she is accomplishing with the life she has been given!
Rating: [5 of 5 Stars!]
[5 of 5 Stars!]
By Donna Kaz, author of UN/MASKED
Date: December 11, 2017
Reading Rebecca Alexander's memoir is like listening to a good friend confide what it is like to gradually lose sight and hearing. As she goes through the progression of how her syndrome effects her body and her life, she lets you in on the ups and downs of her journey without pretense. Rebecca's voice is honest, courageous, funny and inspiring. I loved her descriptions of the many physical challenges she decides to take on and how she is able to harness enduring strength, even as other parts of her body are becoming weaker. A joy to read.
Rating: [5 of 5 Stars!]
[5 of 5 Stars!]
By Barbara S. Pearlman
Date: November 29, 2017
A memoir by Rebecca Alexander who found out at age 19 that she would be blind and deaf. She suffers from Usher Syndrome. The book is compelling and inspirational as Rebecca triumphs over her illness.
Rating: [5 of 5 Stars!]
[5 of 5 Stars!]