Mission: Sofia Sees Hope is a patient advocacy organization dedicated to transforming the lives of those affected by blindness caused by Leber Congenital Amaurosis and other rare inherited retinal diseases by generating awareness, supporting affected families, and raising funds to advance research for diagnosis, treatments, and cures.

Target demographics: children, adults and families affected by blindess caused by inherited retinal diseases

Programs: 1) generating awareness and hope for an end to blindness2) raising funds for diagnosis, treatment, and cures3) providing assistance to support affected families with medical related travel expense