Causes: Eye Diseases, Blindness & Vision Impairments, Health, Specifically Named Diseases

Mission: Our MISSION is to increase public awareness of corneal dystrophy, potentially blinding diseases affecting the transparent front part of the eye.

Results: We have helped about 9000 people in more than 100 countries with support, knowledge and inspiration to overcome their genetic vision disability

Target demographics: People with corneal dystrophies. People who wish to help educate others by supporting our cause. Ophthalmologists who should check for corneal dystrophies at every eye examination with a simple slit lamp test.

Direct beneficiaries per year: 790 people joined our online support group and 2012 literature items were mailed to many countries

Geographic areas served: Worldwide

Programs: Free literature program, mailed 1st class anywhere on this globe.
•Inspirational stories booklet with 9 stories of people who had “been there, done that”.
•Technical primer booklet for someone with a corneal dystrophy. (English & Spanish)oQualifying a specialist. Questions to ask to interview a specialist. oDefinition of cornea tests & typical resultsoHistory Chart for each checkup’s test results/values
•Who we are, What we do, Why we do it brochure to introduce the Foundation and key volunteers.
•Family Support Guide Brochure (English & Spanish)oInformation for patient’s family & friend support network. Online support group (available via browser and email access)
•Restricted access to protect your information
•Terms & conditions define acceptable use, legal remedies.
•Moderators & Mentors guide members discussions, provide research assistance, support, other information and announcements of key events.