Causes: Health, Nerve, Muscle & Bone Diseases, Voluntary Health Associations & Medical Disciplines
Mission: The mission of the Myositis Association is to:- Provide support to myositis patients and their families- Provide connections between the Medical Advisory Board and the general medical and patient communities- Increase funding to support myositis research
Results: There is greater awareness of the disease among physicians; there is better understanding among physicians about how to treat the disease; there are new treatments for the disease that did not exist before; there are research trials underway to find better treatments; TMA has funded 35 research projects related to myositis in the past 10 years
Target demographics: Adults and children -- patients, family members, and caregivers. Medical and therapeutic professionals who work with these patients.
Direct beneficiaries per year: 3,000 patients who are TMA members and 1100 physicians treating myositis patients
Geographic areas served: Primarily North America with some partners in Europe and Australia
Programs: EducationThe Annual Conference brings together myositis patients with health professionals who specialize in myositis and related fields. This event features a panel of medical experts and sessions on treatments, promising research, coping strategies, exercise techniques, and more. Find presentations from previous Conferences. TMA publications —both in print and electronic—present information on diagnosis, treatments, research news, and other relevant topics that help patients and caregivers learn what they need to address their individual health care concerns. SupportSupport groups offer members the chance to share their feelings and discuss their concerns with people in similar situations. These groups encourage an atmosphere of communication and compassion. AdvocacyPublic recognition of myositis, increased research funding, greater access to care, and better coverage and reimbursement for treatments—TMA gives you the tools to make a difference. ResearchTMA provides funding to emerging and established researchers who are seeking answers to the mysteries surrounding myositis. TMA is committed to continuing its research program to increase understanding, find better treatments and, ultimately, a cure.
Mission: The mission of the Myositis Association is to:- Provide support to myositis patients and their families- Provide connections between the Medical Advisory Board and the general medical and patient communities- Increase funding to support myositis research
Results: There is greater awareness of the disease among physicians; there is better understanding among physicians about how to treat the disease; there are new treatments for the disease that did not exist before; there are research trials underway to find better treatments; TMA has funded 35 research projects related to myositis in the past 10 years
Target demographics: Adults and children -- patients, family members, and caregivers. Medical and therapeutic professionals who work with these patients.
Direct beneficiaries per year: 3,000 patients who are TMA members and 1100 physicians treating myositis patients
Geographic areas served: Primarily North America with some partners in Europe and Australia
Programs: EducationThe Annual Conference brings together myositis patients with health professionals who specialize in myositis and related fields. This event features a panel of medical experts and sessions on treatments, promising research, coping strategies, exercise techniques, and more. Find presentations from previous Conferences. TMA publications —both in print and electronic—present information on diagnosis, treatments, research news, and other relevant topics that help patients and caregivers learn what they need to address their individual health care concerns. SupportSupport groups offer members the chance to share their feelings and discuss their concerns with people in similar situations. These groups encourage an atmosphere of communication and compassion. AdvocacyPublic recognition of myositis, increased research funding, greater access to care, and better coverage and reimbursement for treatments—TMA gives you the tools to make a difference. ResearchTMA provides funding to emerging and established researchers who are seeking answers to the mysteries surrounding myositis. TMA is committed to continuing its research program to increase understanding, find better treatments and, ultimately, a cure.
1940 Duke Street Ste 200, Alexandria, VA 22314
703-553-2632
Health
Alexandria
