Causes: Digestive Diseases & Disorders, Health, Lung Diseases
Mission: As an organization operated entirely by adults with CF who volunteer their time, our mission is to provide a source of information and education for adults with CF regarding the basis, nature and progression of CF, the latest treatments and research, and to assist in the psychosocial aspects of coping on a day-to-day basis. This is accomplished by publishing a free, quarterly newsletter called CF Roundtable, and through our website and social media sites.
Results: The US Adult Cystic Fibrosis Association now has over 3000 subscribers to the CF Roundtable newsletter, website and our social media platforms such as Twitter, CF Roundtable FB, CF Connect FB and LinkedIn. CF Roundtable newsletter is available in print (snail mail), by email (PDF) or online through our website when a person subscribes. Anyone can subscribe to learn more about CF and its effects on adults with CF and their families.
Target demographics: Adults with Cystic Fibrosis
Direct beneficiaries per year: Over 3000 subscribers and 13 college students with scholarships.
Geographic areas served: the United States with individuals and organizations within the CF Community
Programs: 1.CF Roundtable, our national quarterly newsletter available for free in print or online via our website, www. cfroundtable. com. 2.Website blog, resources, links to Facebook, Twitter and LinkedIn.
Mission: As an organization operated entirely by adults with CF who volunteer their time, our mission is to provide a source of information and education for adults with CF regarding the basis, nature and progression of CF, the latest treatments and research, and to assist in the psychosocial aspects of coping on a day-to-day basis. This is accomplished by publishing a free, quarterly newsletter called CF Roundtable, and through our website and social media sites.
Results: The US Adult Cystic Fibrosis Association now has over 3000 subscribers to the CF Roundtable newsletter, website and our social media platforms such as Twitter, CF Roundtable FB, CF Connect FB and LinkedIn. CF Roundtable newsletter is available in print (snail mail), by email (PDF) or online through our website when a person subscribes. Anyone can subscribe to learn more about CF and its effects on adults with CF and their families.
Target demographics: Adults with Cystic Fibrosis
Direct beneficiaries per year: Over 3000 subscribers and 13 college students with scholarships.
Geographic areas served: the United States with individuals and organizations within the CF Community
Programs: 1.CF Roundtable, our national quarterly newsletter available for free in print or online via our website, www. cfroundtable. com. 2.Website blog, resources, links to Facebook, Twitter and LinkedIn.
Health
